All ages

Location

Test Location 2
Test Street 2
9999999999 Test City 2 , NH
United States
Phone: 88888888888888888
New Hampshire US
Date: 
Wednesday, February 26, 2020 - 11:30am to Friday, February 28, 2020 - 12:45pm
Description: 
Small description LARGE TEXT TEST Skip line test
Available accessibility accommodations: 
Braille materials
Service animals allowed
Timezone: 
XYZ
Is this event specifically designed or intended for: (check all that apply):: 
Special Interest Groups:: 

Location

Test Location
Test Street Test Floor
10075 New York , NY
United States
Phone: 222-222-2222
New York US
Date: 
Wednesday, January 15, 2020 - 4:15pm to Thursday, January 16, 2020 - 11:15pm
Description: 
This is a test event - the event is for a test and will test the event submission process.
Available accessibility accommodations: 
Closed captioning
Service animals allowed
Timezone: 
EST
Discipline or Interest: 
Type of Program/Event: 
As it relates to the ADA@30 project does this event represent (check all that apply):: 
Directions to accessible entrance by private vehicle:: 
Turn down 30th street and make a right on Lexington Ave. Around the corner is a doorway - Access to the venue is 3 bricks up and 2 to the left.
Directions to accessible entrance by public transportation:: 
Test of Directions to accessible entrance by public transportation:
Is this event specifically designed or intended for: (check all that apply):: 
This community of disabled people:: 
Man in front of pharmacy shelves
Photo credit: 
John Brigande Ph.D.
Announcements
Blog
News
Press
Original Published Date: 
Wednesday, February 17, 2016
City: 
New York
Demographic: 

I was about 9 when hearing loss in my left ear was first detected. The audiologist explained to me that as a result, I may not be able to hear birds singing as easily, and that I may need to concentrate more to understand words starting with “sh,” “k,” or “t.” Sensing my alarm, she tried to reassure me by saying it was unlikely that the hearing loss would affect both ears, and if it did, it would likely not be to the same extent.

Managing the loss of a primary sense is all about adaptation. In grade school, I simply tilted my right ear toward sound sources. Over time my hearing loss became bilateral and progressive, and its cause remains unknown. In graduate school I began using hearing aids and later received a cochlear implant in my left ear. I continue to use a hearing aid in my right ear, and thankfully for the past eight years, my hearing has remained stable, if stably poor.

I have always compensated. At Boston College (where I received my undergraduate, Master’s, and Ph.D., all in the biological sciences) I sat in the front seat of my classes, as close to the speaker as possible. I asked my professors and classmates to face me when they spoke so I could use visual cues to enhance oral comprehension. During postdoctoral training in auditory neuroscience at Purdue University, I was given complimentary assistive listening technology upon my arrival to the lab.

While I do not consider my hearing loss to be a profound limitation personally or professionally, it has certainly sculpted my career path. When picking my area of scientific focus, I settled on a career in auditory neuroscience to better understand hearing loss.

I also reasoned that the auditory research conferences and meetings I’d be attending would likely have assistive listening technology to allow me to participate more fully. I have benefited immeasurably from the scientific community that makes up the Association for Research in Otolaryngology, whose meetings have world-class assistive listening technologies and interpreter services plus overwhelming support of members who have hearing loss.

As I entered my 40s, I experienced vertigo for the first time. The clinical data do not fit with a diagnosis of Ménière’s disease, and the link between my vertigo and hearing loss is unclear.

When I have an acute attack of dizziness, my visual field scrolls from right to left very quickly so that I must close my eyes to avoid profound motion sickness and vomiting. I must lie down until the dizziness subsides, which is usually 12 to 16 hours. I honestly cannot do anything—I can only hope to fall asleep quickly.

Vertigo is a profound limitation for me. With no disrespect or insensitivity intended toward the hearing impaired community—of which I am a passionate member—I would take hearing loss over vertigo in a heartbeat. Dizziness incapacitates me, and I cannot be an effective researcher, educator, husband, or father. Some people perceive an aura before their dizziness occurs, but I do not get any advance warning. Unlike hearing loss, I cannot manage my dizziness—it takes hold and lets go when it wants to.

I recall one episode especially vividly. I was invited to give a seminar at the National Institute on Deafness and Other Disorders (NIDCD) and experienced a severe attack just hours before my flight. Vertigo forced me to reschedule my visit, which was tremendously frustrating. That night, I slept in the bathroom (my best solution when vertigo hits). Vestibular (balance) dysfunction is quite simply a game changer.   

A satisfying part of my research involves trying to define treatments for hearing loss and dizziness. Usher syndrome is a condition combining hearing, balance, and vision disorders. In Usher syndrome type 1, infants are born deaf and have severe vestibular problems; vision abnormalities appear by around age 10. In working with a group of dedicated colleagues at various institutions, we have evidence that fetal administration of a drug in mice with Usher syndrome type 1 can prevent balance abnormalities.

As part of HHF’s Hearing Restoration Project (HRP) consortium, I have been working on testing gene candidates in mice for their ability to trigger hair cell regeneration. This research is exciting as it is leading the HRP into phase 2 of its strategic plan, with phase 3 involving further testing for drug therapies. The probability is that manipulating a single gene will not provide lasting hearing restoration, and that we will need to figure out how to manipulate multiple genes in concert to achieve the best therapeutic outcomes.

It is an exciting time to be a neuroscientist interested in trying to find ways to help patients with hearing loss and balance issues. I am hopeful that we will make progress in defining new ways to treat and even prevent vertigo in the near future and ultimately to discover a cure for hearing loss and tinnitus.

 

Hearing Restoration Project consortium member John V. Brigande, Ph.D., is a developmental neurobiologist at the Oregon Hearing Research Center. He also teaches in the Neuroscience Graduate Program and in the Program in Molecular and Cellular Biology at the Oregon Health & Science University.

 

 

Your financial support will help ensure we can continue this vital research in order to find a cure for hearing loss and tinnitus in our lifetime. Please donate today to fund the top scientific minds working collaboratively toward a common goal.For more information or to make a donation, email us at development@hhf.org

Your help provides hope.

 

This blog was republished with permission of the Hearing Health Foundation (HHF.org).

Announcements
Original Published Date: 
Tuesday, February 23, 2016
City: 
New York
Subject of Interest: 
Demographic: 

Thanks to generous donations, Hearing Health Foundation is requesting Emerging Research Grants (ERG) proposals in the areas of:

  • Ménière's disease, for innovative research that will increase our understanding of the inner ear and balance disorder.
     
  • Stria vascularis, for research that will increase our understanding of strial atrophy and/or development of the stria.

Letters of iIntents (LOIs) are required before a full application can be submitted. Full applications are due Thursday, March 31. 

Please review our Policy on Emerging Research Grants for eligibility requirements. If you are eligible, please make note of the deadlines below and review the instructions for submitting a LOI.

 

Deadlines:

  • Full Application: March 31, 2016 
  • Award Notification: Spring 2016
  • Grant Period: July 1, 2016 - June 30, 2017

If you have any questions about the ERG program and process, please contact us at grants@hhf.org

 

Thank you for your interest in the ERG program. Please forward and share this information with your colleagues. 

 

We need your help in funding the exciting work of hearing and balance scientists.
To donate today to support HHF's groundbreaking research,

please visit hhf.org/name-a-grant.

Institution: 
Hearing Health Foundation
Lane Harwell speaking
Photo credit: 
Lane Harwell, Executive Director, Dance/NYC (Credit: Jeffrey Lee, On The Spot Image)
News
Press
Original Published Date: 
Wednesday, October 14, 2015
City: 
New York
Adjectives: 
Types of Culture: 
Subject of Interest: 
Demographic: 

It's time for a new understanding of disability, especially in the arts" - by Lane Harwell, Executive Director, Dance/NYC

Read more of his article on Fox News online.

Institution: 
Dance/NYC
A large crowd of people in front of a carnival ride.
Blog
Original Published Date: 
Sunday, July 26, 2015
City: 
New York
Adjectives: 
Demographic: 

Chinatown Partnership and Art Beyond Sight will host a birthday party and arts festival throughout streets in Chinatown to recognize the 25th anniversary of the Americans with Disabilities Act (ADA25). This event is free and open to the public. In light of the celebration, local businesses in Chinatown -- a minimally accessible neighborhood of New York City – have made new commitments to augment the accessibility of their venues.
Visitors will enjoy live music, dancing, and art. Co-host Art Beyond Sight will lead those with little to no vision in creating tactile works through touch while the Chinatown Partnership will offer noodle-making demonstrations. Zulu-P, a funk hip-hop collective led by New York City-based singers with developmental disabilities; diaboloTeamNYC, a group of Chinese yoyo performers; opera singer Paulette Penzvalto; and many others will be among the entertainers. New York City cultural institutions including The Metropolitan Museum of Art, Solomon R. Guggenheim Museum, National September 11 Memorial & Museum, and The Origami Therapy Association will lead interactive art demonstrations and crafts. The Museum of Modern Art will facilitate the creation of a collaborative community sketchbook that will be modeled to look like a birthday card for ADA25.

The Americans with Disabilities Act’s 25th birthday party is organized by the Chinatown Partnership, (www.chinatownpartnership.org) and Art Beyond Sight (www.artbeyondsight.org), with the support of the Mayor’s Office for People with Disabilities (www.nyc.gov/mopd) and CUNY Coalition for Students with Disabilities. For a full list of participating organizations please visit www.explorechinatown.com.

Institution: 
The Villager
People crowded in a area indoors
News
Original Published Date: 
Sunday, July 26, 2015
City: 
New York
Adjectives: 
Demographic: 

Chinatown Partnership and Art Beyond Sight will host a birthday party and arts festival throughout streets in Chinatown to recognize the 25th anniversary of the Americans with Disabilities Act (ADA25). This event is free and open to the public. In light of the celebration, local businesses in Chinatown -- a minimally accessible neighborhood of New York City – have made new commitments to augment the accessibility of their venues.
Visitors will enjoy live music, dancing, and art. Co-host Art Beyond Sight will lead those with little to no vision in creating tactile works through touch while the Chinatown Partnership will offer noodle-making demonstrations. Zulu-P, a funk hip-hop collective led by New York City-based singers with developmental disabilities; diaboloTeamNYC, a group of Chinese yoyo performers; opera singer Paulette Penzvalto; and many others will be among the entertainers. New York City cultural institutions including The Metropolitan Museum of Art, Solomon R. Guggenheim Museum, National September 11 Memorial & Museum, and The Origami Therapy Association will lead interactive art demonstrations and crafts. The Museum of Modern Art will facilitate the creation of a collaborative community sketchbook that will be modeled to look like a birthday card for ADA25.

The Americans with Disabilities Act’s 25th birthday party is organized by the Chinatown Partnership, (www.chinatownpartnership.org) and Art Beyond Sight (www.artbeyondsight.org), with the support of the Mayor’s Office for People with Disabilities (www.nyc.gov/mopd) and CUNY Coalition for Students with Disabilities. For a full list of participating organizations please visit www.explorechinatown.com.

Price: Free

Institution: 
Social In New York
Large Crowd of people.
News
Original Published Date: 
Sunday, July 26, 2015
City: 
New York
Adjectives: 
Demographic: 

Chinatown Partnership and Art Beyond Sight will host a birthday party and arts festival throughout streets in Chinatown to recognize the 25th anniversary of the Americans with Disabilities Act (ADA25). This event is free and open to the public. In light of the celebration, local businesses in Chinatown -- a minimally accessible neighborhood of New York City – have made new commitments to augment the accessibility of their venues.
Visitors will enjoy live music, dancing, and art. Co-host Art Beyond Sight will lead those with little to no vision in creating tactile works through touch while the Chinatown Partnership will offer noodle-making demonstrations. Zulu-P, a funk hip-hop collective led by New York City-based singers with developmental disabilities; diaboloTeamNYC, a group of Chinese yoyo performers; opera singer Paulette Penzvalto; and many others will be among the entertainers. New York City cultural institutions including The Metropolitan Museum of Art, Solomon R. Guggenheim Museum, National September 11 Memorial & Museum, and The Origami Therapy Association will lead interactive art demonstrations and crafts. The Museum of Modern Art will facilitate the creation of a collaborative community sketchbook that will be modeled to look like a birthday card for ADA25.

The Americans with Disabilities Act’s 25th birthday party is organized by the Chinatown Partnership, (www.chinatownpartnership.org) and Art Beyond Sight (www.artbeyondsight.org), with the support of the Mayor’s Office for People with Disabilities (www.nyc.gov/mopd) and CUNY Coalition for Students with Disabilities. For a full list of participating organizations please visit www.explorechinatown.com.

Institution: 
Social In Manhattan
Large Crowd of people.
Blog
News
Original Published Date: 
Sunday, July 26, 2015
City: 
New York
Adjectives: 
Demographic: 

Chinatown Partnership and Art Beyond Sight will host a birthday party and arts festival throughout streets in Chinatown to recognize the 25th anniversary of the Americans with Disabilities Act (ADA25). This event is free and open to the public. In light of the celebration, local businesses in Chinatown -- a minimally accessible neighborhood of New York City – have made new commitments to augment the accessibility of their venues.
Visitors will enjoy live music, dancing, and art. Co-host Art Beyond Sight will lead those with little to no vision in creating tactile works through touch while the Chinatown Partnership will offer noodle-making demonstrations. Zulu-P, a funk hip-hop collective led by New York City-based singers with developmental disabilities; diaboloTeamNYC, a group of Chinese yoyo performers; opera singer Paulette Penzvalto; and many others will be among the entertainers. New York City cultural institutions including The Metropolitan Museum of Art, Solomon R. Guggenheim Museum, National September 11 Memorial & Museum, and The Origami Therapy Association will lead interactive art demonstrations and crafts. The Museum of Modern Art will facilitate the creation of a collaborative community sketchbook that will be modeled to look like a birthday card for ADA25.

The Americans with Disabilities Act’s 25th birthday party is organized by the Chinatown Partnership, (www.chinatownpartnership.org) and Art Beyond Sight (www.artbeyondsight.org), with the support of the Mayor’s Office for People with Disabilities (www.nyc.gov/mopd) and CUNY Coalition for Students with Disabilities. For a full list of participating organizations please visit www.explorechinatown.com.

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